{"id":103,"date":"2023-01-24T11:28:15","date_gmt":"2023-01-24T11:28:15","guid":{"rendered":"https:\/\/mft.staging.every1preview.co.uk\/hcc\/?page_id=103"},"modified":"2023-07-13T15:04:35","modified_gmt":"2023-07-13T15:04:35","slug":"patient-public-voice-group","status":"publish","type":"page","link":"https:\/\/mft.nhs.uk\/hcc\/patient-parent-carer-zone\/patient-public-voice-group\/","title":{"rendered":"Patient & Public Voice Group"},"content":{"rendered":"

[vc_row][vc_column][vc_column_text]<\/p>\n

Patient and Public Voice (PPV)<\/h1>\n

The Network would like to establish a Patient and Public Voice (PPV) forum for the North England Haemoglobinopathy Coordinating Centre (HCC) which would feed into the HCC Board via a nominated representative.<\/p>\n

The proposed group would comprise of patient, parent, and carer representatives from paediatric and adult services with a view that representatives of children, adolescent, and adults are involved. The PPV Group would lead on decisions made by the HCC around engagement of the patient population and patient involvement in the aims of the HCC<\/a>.<\/p>\n

The PPV Group would be an integral part of the HCC and would lead, advise, coordinate, and report on progress in achieving the strategic aim of involving patients and the public for their views to affect decisions taken about the planning, improvement, monitoring and evaluation of all services within the network.<\/p>\n

This proposal is currently under review by the Patient Experience team at Manchester University NHS Foundation Trust.[\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column][vc_column_text]<\/p>\n

Your voice<\/h2>\n

We are conducting a series of surveys to assess patient and parent \/ carer experiences within haematology services across North England.<\/p>\n

We know that you may have filled several of these surveys before, but your answers will provide valuable feedback on the quality of care received by patients and will help us to know what is working well and what needs improving in your current service.<\/p>\n

We are committed to ensuring you receive the best care and overall experience, so we welcome all your comments. All comments will be shared with your team anonymously<\/strong> to help drive service improvement.<\/strong> Through a number of questions, we will be asking you to guide us through your experience of haematology services.[\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column][vc_column_text]<\/p>\n

Thalassaemia<\/span><\/h3>\n

[\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column][vc_tta_accordion][vc_tta_section title=”Adult Patient Experience Survey \u2013 Thalassaemia” tab_id=”1676898001794-277d0c62-2405″][vc_column_text]Click here <\/a>to complete the survey or scan the QR code below.<\/p>\n

Note: if you experience problems opening the link please select \u201copen in browser\u201d option.<\/em>[\/vc_column_text][vc_single_image image=”1029″ style=”vc_box_border” border_color=”black”][vc_empty_space height=”20px”][\/vc_tta_section][vc_tta_section title=”Transition to Adult Thalassaemia Service” tab_id=”1676898002041-4aa3c0a3-af60″][vc_column_text]\u00a0<\/strong>Now you have transferred from Children and Young People\u2019s Unit to Adult Services, we would like to know what your experience has been of this process.\u00a0Understanding your experience will help us to improve this process for other young people in the future. Thank you for taking the time to complete\u00a0this short survey.<\/p>\n

Click here<\/a> to complete the survey or scan the QR code below.<\/p>\n

Note: if you experience problems opening the link please select \u201copen in browser\u201d option.<\/em>[\/vc_column_text][vc_single_image image=”1028″ style=”vc_box_border” border_color=”black”][vc_empty_space height=”20px”][\/vc_tta_section][vc_tta_section title=”Questionnaire for Children with Thalassaemia” tab_id=”1676898472296-197983ba-db0a”][vc_column_text]<\/p>\n

We would like to hear from you about your experience at being treated at this hospital for your thalassaemia care. Your answers will be kept a secret so you can be as honest as possible!<\/div>\n

Click here<\/a> to complete the survey or scan the QR code below.<\/p>\n

Note: if you experience problems opening the link please select \u201copen in browser\u201d option.<\/em>[\/vc_column_text][vc_single_image image=”1027″ style=”vc_box_border” border_color=”black”][vc_empty_space height=”20px”][\/vc_tta_section][vc_tta_section title=”Parents\/Carer’s Experience Survey – Thalassaemia” tab_id=”1676898520784-00341c68-e41f”][vc_column_text]Click here<\/a> to complete the survey or scan the QR Code below.<\/p>\n

Note: if you experience problems opening the link please select \u201copen in browser\u201d option.<\/em>[\/vc_column_text][vc_single_image image=”1026″ style=”vc_box_border” border_color=”black”][vc_empty_space height=”20px”][\/vc_tta_section][\/vc_tta_accordion][\/vc_column][\/vc_row][vc_row][vc_column][vc_column_text]<\/p>\n

Sickle Cell<\/span><\/h3>\n

[\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column][vc_tta_accordion][vc_tta_section title=”Patient Experience Measure for Sickle Cell Disease – Adult” tab_id=”1676898901495-078bd59d-9b5f”][vc_column_text]Click here<\/a> to complete the survey or scan the QR Code.<\/p>\n

Note: if you experience problems opening the link please select \u201copen in browser\u201d option.<\/em>[\/vc_column_text][vc_single_image image=”1034″ style=”vc_box_border” border_color=”black”][vc_empty_space height=”20px”][\/vc_tta_section][vc_tta_section title=”Patient Experience Measure for Sickle Cell Disease – Parent \/ Carer” tab_id=”1676898901514-c01970ea-6351″][vc_column_text]\u00a0<\/strong>Click here<\/a> to complete the survey or scan the QR code below.<\/p>\n

Note: if you experience problems opening the link please select \u201copen in browser\u201d option.<\/em>[\/vc_column_text][vc_single_image image=”1033″ style=”vc_box_border” border_color=”black”][vc_empty_space height=”20px”][\/vc_tta_section][vc_tta_section title=”Patient Experience Measure for Sickle Cell Disease – Child” tab_id=”1676899010036-6c408e89-ece3″][vc_column_text]The questionnaire is for children aged 8-15 years with sickle cell. This survey is being
\nconducted only in the UK – the questionnaire has been developed and tested based on care in
\nEngland.<\/p>\n

The young person with sickle cell should complete the questionnaire on his or her own<\/strong>
\nwhere possible. Where they are unable, their parent\/carer can complete it on their behalf or<\/strong>
\nalongside the young person, but please complete it from their viewpoint.<\/strong><\/p>\n

Click here<\/a> to complete the survey or scan the QR code below.<\/p>\n

Note: if you experience problems opening the link please select \u201copen in browser\u201d option.<\/em>[\/vc_column_text][vc_single_image image=”1032″ style=”vc_box_border” border_color=”black”][vc_empty_space height=”20px”][\/vc_tta_section][\/vc_tta_accordion][\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"

[vc_row][vc_column][vc_column_text] Patient and Public Voice (PPV) The Network would like to establish a Patient and Public Voice (PPV) forum for the North England Haemoglobinopathy Coordinating Centre (HCC) which would feed into the HCC Board via a nominated representative. 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