{"id":22,"date":"2023-01-16T14:50:54","date_gmt":"2023-01-16T14:50:54","guid":{"rendered":"https:\/\/mft.staging.every1preview.co.uk\/hcc\/?page_id=22"},"modified":"2023-07-18T16:16:10","modified_gmt":"2023-07-18T16:16:10","slug":"resources","status":"publish","type":"page","link":"https:\/\/mft.nhs.uk\/hcc\/patient-parent-carer-zone\/resources\/","title":{"rendered":"Resources"},"content":{"rendered":"<div class=\"wpb-content-wrapper\"><p>[vc_row][vc_column]<section>\n                                <div class=\"c-page-contents\">\n                                    <h2 class=\"c-page-contents__title-heading\">Page contents<\/h2>\n                                    <ol class=\"c-page-contents__list c-page-contents__two-col\">\n                                    <li class=\"c-page-contents__list-item\">\n\n                     <a href=\"#introduction\" class=\"c-page-contents__list-item-link\">Introduction<\/a>\n\n                    <\/li><li class=\"c-page-contents__list-item\">\n\n                     <a href=\"#newtreatments\" class=\"c-page-contents__list-item-link\">New Treatments<\/a>\n\n                    <\/li><li class=\"c-page-contents__list-item\">\n\n                     <a href=\"#holistic\" class=\"c-page-contents__list-item-link\">Holistic Care &amp; Benefits<\/a>\n\n                    <\/li>\n                                    <\/ol>\n                                <\/div>\n\n                        <\/section>[\/vc_column][\/vc_row][vc_row el_id=&#8221;introduction&#8221;][vc_column][vc_row_inner][vc_column_inner][vc_column_text]<\/p>\n<h2>Introduction<\/h2>\n<p>[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_column_text]<strong>What is Sickle Cell?<\/strong><\/p>\n<p>Sickle cell is a <strong>genetic<\/strong> blood disorder effecting the <strong>shape<\/strong> of haemoglobin in the red blood cells. Haemoglobin is the substance in red blood cells that is responsible for carrying oxygen around the body. People with sickle cell disorder are <strong>born with the condition<\/strong> &#8211; it is not contagious.<\/p>\n<p>The main symptoms of sickle cell disorder are <strong>anaemia and episodes of severe pain<\/strong>. The pain occurs when the cells change shape after oxygen has been released. The red blood cells then stick together, causing blockages in the small blood vessels. These painful episodes are referred to as sickle cell crisis. They are treated with strong painkillers such as morphine to control the pain. People with sickle cell are at risk of complications stroke, acute chest syndrome, blindness, bone damage and priapism. Over time people with sickle cell can experience damage to organs such as the liver, kidney, lungs, heart and spleen. Death can also result from complications of the disorder.<\/p>\n<p>Treatment of sickle cell mostly focuses on preventing and treating complications. Research into the treatment of sickle cell has intensified over the past decade. Clinical trials are held nationwide, and any new NHS treatments await scrutiny and approval from the National Institute for Health and Care Excellence (NICE.)<\/p>\n<p>To find out more about sickle cell <a href=\"https:\/\/www.sicklecellsociety.org\/about-sickle-cell\/\">click here<\/a><\/p>\n<p><strong>What is Thalassaemia?<\/strong><\/p>\n<p>Thalassaemia is a <strong>genetic<\/strong> blood disorders affecting the <strong>production<\/strong> of haemoglobin. People with thalassaemia produce <strong>either no or too little haemoglobin.<\/strong> Haemoglobin is an iron-rich protein in red blood cells that carries oxygen to all parts of the body.<\/p>\n<p>Thalassaemia is inherited from parents, it is not contagious, or a virus acquired from blood transfusions. It is passed on equally by men and women.<\/p>\n<p data-block-key=\"b8ha8\">The main\u00a0health conditions associated\u00a0with thalassaemia\u00a0are:<\/p>\n<ul>\n<li data-block-key=\"07rwg\">Anaemia \u2013 severe tiredness, weakness, <a href=\"https:\/\/www.nhs.uk\/conditions\/shortness-of-breath\/\">shortness of breath<\/a>, pounding, fluttering or\u00a0irregular\u00a0heartbeats (<a href=\"https:\/\/www.nhs.uk\/conditions\/heart-palpitations\/\">palpitations<\/a>) and pale skin caused by the lack of haemoglobin<\/li>\n<li data-block-key=\"q5gph\">Too much iron in the body \u2013 this is caused by the regular blood transfusions used to treat anaemia and can cause problems with the heart, liver and hormone levels if untreated<\/li>\n<\/ul>\n<p data-block-key=\"0x0fu\">Some people may also have delayed growth, weak and fragile bones\u00a0(<a href=\"https:\/\/www.nhs.uk\/conditions\/osteoporosis\/\">osteoporosis<\/a>), and\u00a0<a href=\"https:\/\/www.nhs.uk\/conditions\/infertility\/\">reduced fertility<\/a>.<\/p>\n<p>To find out more about thalassaemia <a href=\"https:\/\/www.nhs.uk\/conditions\/thalassaemia\/#:~:text=Thalassaemia%20is%20the%20name%20for,short%20of%20breath%20and%20pale\">click here<\/a><\/p>\n<p>UK Thalassaemia Society (UKTS) is a thalassaemia patient support and advocacy group &#8211; to find out more <a href=\"https:\/\/ukts.org\/what-is-thal\/\">click here<\/a><\/p>\n<p><strong>What are Rare Inherited Anaemias? <\/strong><\/p>\n<p>Rare Inherited Anaemias (RIA) are rare <strong>genetic<\/strong> <strong>blood<\/strong> <strong>disorders<\/strong>. Examples of RIAs are as follows:<br \/>\n\u2022 <strong>Diamond-Blackfan Anaemia<\/strong> &#8211; a rare blood condition where the bone marrow fails to produce enough red blood cells.<br \/>\n\u2022 <strong>Congenital Dyserythropoietic Anaemia <\/strong>&#8211; an inherited blood disorder that affects the development of red blood cells.<br \/>\n\u2022 <strong>Congenital sideroblastic Anaemia<\/strong> &#8211; an uncommon, diverse class of inherited hematopoietic disorders. In which the bone marrow fails to produce a sufficient number of healthy red blood cells.<br \/>\n\u2022 <strong>Red cell Membrane disorders<\/strong><br \/>\n\u2022 <strong>Red Cell Enzyme disorders<\/strong><br \/>\n\u2022 <strong>Transfusion-dependent unexplained inherited anaemias<\/strong><\/p>\n<p>As these types of anaemias are rare, research into the conditions continue. To find out more about RIA <a href=\"https:\/\/www.jla.nihr.ac.uk\/priority-setting-partnerships\/rare-inherited-anaemias\/\">click here<\/a>[\/vc_column_text][\/vc_column][\/vc_row][vc_row el_id=&#8221;newtreatments&#8221;][vc_column][vc_row_inner][vc_column_inner][vc_column_text]<\/p>\n<h2>New Treatments<\/h2>\n<p>[\/vc_column_text]<figure class=\"c-content__image\">\n    <img decoding=\"async\" src=\"https:\/\/mft.nhs.uk\/app\/uploads\/sites\/16\/2023\/02\/new-treatments-1000x539-1.jpg\" alt=\"\" \/>\n    <figcaption class=\"c-content__image-caption\"><\/figcaption>\n<\/figure>\n\n<a  class=\"c-button c-button--primary c-button--hcc\"\n    title=\"https:\/\/mft.nhs.uk\/app\/uploads\/sites\/16\/2023\/02\/scd-future-treatment-JS-shortened.pdf\"\n    target=\"\"\n    rel=\"\"\n    href=\"\n\">\n            <span class=\"o-icon c-button__icon\">\n            \n        <\/span>\n        Download the Treatment Presentation\n<\/a>\n[vc_column_text]<strong>The future of sickle cell treatment &#8211; Dr Sharif<\/strong><\/p>\n<p>Dr Sharif, Consultant Haematologist at Manchester Royal Infirmary, provided a presentation regarding the future of sickle cell treatment at the HCC NW Sickle Cell Engagement Event in November 2022.[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_single_image image=&#8221;1020&#8243; img_size=&#8221;full&#8221;][vc_column_text]<strong>Clinical Trials\u00a0<\/strong><\/p>\n<p>There are a number of clinical trials across the UK. Head to our <a href=\"https:\/\/mft.nhs.uk\/hcc\/patient-parent-carer-zone\/research\/\">research page<\/a> to find out what is available in North England.[\/vc_column_text][\/vc_column][\/vc_row][vc_row el_id=&#8221;holistic&#8221;][vc_column][vc_column_text css_animation=&#8221;appear&#8221;]<\/p>\n<h2><strong>Holistic Care &amp; Benefits <\/strong><\/h2>\n<p><b>Our mission: to engage patients, parents, carers, using an integrative holistic system of resources and programming that maximise health and well-being.<\/b><\/p>\n<p><strong>What is Holistic Care all about?<\/strong><br \/>\n\u2022 Making healthy lifestyle choices<br \/>\n\u2022 Taking responsibility for your health<br \/>\n\u2022 Getting preventive care examinations and vaccinations<br \/>\n\u2022 Knowing when to see a healthcare provider<br \/>\n\u2022 Knowing when to get emergency care<\/p>\n<p>As a sickle cell, thalassemia, or Rare Inherited Anaemia patient, you should have access to a variety of health, wellness, and social care resources to form a network of self-care.<\/p>\n<p>The HCC Administration Team are working with health care professionals, patient representatives and other stakeholders to provide information\u00a0 regarding healthy habits, a healthy mind, medical care, social networks, work life, social care support, and media.<\/p>\n<p><a href=\"https:\/\/mft.nhs.uk\/app\/uploads\/sites\/16\/2023\/02\/Patient-Resources-Holistic-Section_.doc\">Click here to read further.<\/a><\/p>\n<p><strong>Healthy Minds\u00a0<\/strong><\/p>\n<p><a href=\"https:\/\/www.kooth.com\/\">Kooth<\/a> and<a href=\"https:\/\/www.qwell.io\/\"> Qwell are<\/a> both online counselling and emotional well-being services for children, young people, and adults &#8211; available <strong>free<\/strong> at the point of access.<\/p>\n<p>The services are:<\/p>\n<ul>\n<li>Safe, confidential, anonymous<\/li>\n<li>Free at the point of need<\/li>\n<li>Available through a smart phone, tablet or computer<\/li>\n<li>Kooth &amp; Qwell helps to reduce wait times for people seeking help and removes stigma around mental health. It allows people access to a team of accredited counsellors, therapists and support workers who provide guided, outcome-focused help for everyone.<\/li>\n<\/ul>\n<p>The organisation works with local authorities, CCGs, mental health trusts, charities and other organisations to provide early intervention support with clear escalation and de-escalation pathways.<\/p>\n<p>Click on the following links to understand how it works:<\/p>\n<ul>\n<li><a href=\"https:\/\/www.kooth.com\/video\">Children &amp; young people<\/a><\/li>\n<li><a href=\"https:\/\/www.qwell.io\/video\">Adults<\/a><\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<p>[\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column][vc_column_text]Healthy Minds<\/p>\n<p>[\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column][vc_column_text]<\/p>\n<h2>Blog<\/h2>\n<p>[\/vc_column_text]<section>\n\t\n\t<div class=\"container\">\n\t\t<!-- Layout: News-Events -->\n\t\t<div class=\"l-on-page-news\">\t  \n\n\t\t\t<!-- News-->\n\t\t\t<section class=\"c-news-events  \">\n\t\t\t\t<div class=\"container\">\n\t\t\t\t\t<ul class=\"c-news-events__list\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<li class=\"c-news-events__item\">\n\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t<div class=\"c-news-events__item-image\">\n\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/mft.nhs.uk\/hcc\/my-top-tips-for-living-with-sickle-cell\/\" title=\"My Top Tips for Living with Sickle Cell\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/mft.nhs.uk\/app\/uploads\/sites\/16\/2023\/02\/elizabeth-caulley.jpeg\" alt=\"My Top Tips for Living with Sickle Cell\" \/>\n\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t<div class=\"c-news-events__item-content\">\n\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/mft.nhs.uk\/hcc\/category\/news\/patient-carer-resources\/\" title=\"Patient &amp; Carer Resources\" class=\"c-news-events__item-category u-border-trust\">Patient &amp; Carer Resources<\/a>\n\t\t\t\t\t\t\t\t\t<a class=\"c-news-events__item-link\" href=\"https:\/\/mft.nhs.uk\/hcc\/my-top-tips-for-living-with-sickle-cell\/\" title=\"My Top Tips for Living with Sickle Cell\">\n\t\t\t\t\t\t\t\t\t\t<h4 class=\"c-news-events__item-title\">My Top Tips for Living with Sickle Cell<\/h4>\n\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t<span class=\"c-news-events__item-date\">24 Jan 2023<\/span>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<li class=\"c-news-events__item\">\n\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t<div class=\"c-news-events__item-image\">\n\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/mft.nhs.uk\/hcc\/the-new-black-film-collective-sickle-cell-awareness-project\/\" title=\"The New Black Film Collective Sickle Cell Awareness Project\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/mft.nhs.uk\/app\/uploads\/sites\/16\/2023\/02\/Sickle-Cell-Warrior-266x248.jpeg\" alt=\"The New Black Film Collective Sickle Cell Awareness Project\">\n\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t<div class=\"c-news-events__item-content\">\n\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/mft.nhs.uk\/hcc\/category\/news\/\" title=\"News\" class=\"c-news-events__item-category u-border-trust\">News<\/a>\n\t\t\t\t\t\t\t\t\t<a class=\"c-news-events__item-link\" href=\"https:\/\/mft.nhs.uk\/hcc\/the-new-black-film-collective-sickle-cell-awareness-project\/\" title=\"The New Black Film Collective Sickle Cell Awareness Project\">\n\t\t\t\t\t\t\t\t\t\t<h4 class=\"c-news-events__item-title\">The New Black Film Collective Sickle Cell Awareness Project<\/h4>\n\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t<span class=\"c-news-events__item-date\">13 Feb 2023<\/span>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<li class=\"c-news-events__item\">\n\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t<div class=\"c-news-events__item-image\">\n\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/mft.nhs.uk\/hcc\/oldham-girl-with-rare-blood-condition-receives-life-changing-support-from-north-west-wide-transfusion-programme\/\" title=\"Oldham girl with rare blood condition receives life changing support from North West wide transfusion programme\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/mft.nhs.uk\/app\/uploads\/sites\/16\/2023\/07\/MWmay23-442698-266x248.jpg\" alt=\"Oldham girl with rare blood condition receives life changing support from North West wide transfusion programme\">\n\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t<div class=\"c-news-events__item-content\">\n\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/mft.nhs.uk\/hcc\/category\/news\/\" title=\"News\" class=\"c-news-events__item-category u-border-trust\">News<\/a>\n\t\t\t\t\t\t\t\t\t<a class=\"c-news-events__item-link\" href=\"https:\/\/mft.nhs.uk\/hcc\/oldham-girl-with-rare-blood-condition-receives-life-changing-support-from-north-west-wide-transfusion-programme\/\" title=\"Oldham girl with rare blood condition receives life changing support from North West wide transfusion programme\">\n\t\t\t\t\t\t\t\t\t\t<h4 class=\"c-news-events__item-title\">Oldham girl with rare blood condition receives life changing support from North West wide transfusion programme<\/h4>\n\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t<span class=\"c-news-events__item-date\">03 Jul 2023<\/span>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<li class=\"c-news-events__item\">\n\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t<div class=\"c-news-events__item-image\">\n\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/mft.nhs.uk\/hcc\/a-mancunian-woman-revives-her-dream-to-visit-the-north-pole-after-receiving-new-nhs-treatment-for-sickle-cell\/\" title=\"A Mancunian woman revives her dream to visit the North Pole after receiving new NHS treatment for Sickle Cell.\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/mft.nhs.uk\/app\/uploads\/sites\/16\/2023\/07\/Gloria-scaled-1024x683-1-266x248.jpg\" alt=\"A Mancunian woman revives her dream to visit the North Pole after receiving new NHS treatment for Sickle Cell.\">\n\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t<div class=\"c-news-events__item-content\">\n\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/mft.nhs.uk\/hcc\/category\/news\/\" title=\"News\" class=\"c-news-events__item-category u-border-trust\">News<\/a>\n\t\t\t\t\t\t\t\t\t<a class=\"c-news-events__item-link\" href=\"https:\/\/mft.nhs.uk\/hcc\/a-mancunian-woman-revives-her-dream-to-visit-the-north-pole-after-receiving-new-nhs-treatment-for-sickle-cell\/\" title=\"A Mancunian woman revives her dream to visit the North Pole after receiving new NHS treatment for Sickle Cell.\">\n\t\t\t\t\t\t\t\t\t\t<h4 class=\"c-news-events__item-title\">A Mancunian woman revives her dream to visit the North Pole after receiving new NHS treatment for Sickle Cell.<\/h4>\n\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t<span class=\"c-news-events__item-date\">11 Jul 2023<\/span>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<li class=\"c-news-events__item\">\n\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t<div class=\"c-news-events__item-image\">\n\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/mft.nhs.uk\/hcc\/safe-for-summer\/\" title=\"Safe for Summer\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/mft.nhs.uk\/app\/uploads\/sites\/16\/2023\/07\/summer-1-3-242x248.jpg\" alt=\"Safe for Summer\">\n\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t<div class=\"c-news-events__item-content\">\n\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/mft.nhs.uk\/hcc\/category\/news\/\" title=\"News\" class=\"c-news-events__item-category u-border-trust\">News<\/a>\n\t\t\t\t\t\t\t\t\t<a class=\"c-news-events__item-link\" href=\"https:\/\/mft.nhs.uk\/hcc\/safe-for-summer\/\" title=\"Safe for Summer\">\n\t\t\t\t\t\t\t\t\t\t<h4 class=\"c-news-events__item-title\">Safe for Summer<\/h4>\n\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t<span class=\"c-news-events__item-date\">25 Jul 2023<\/span>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<li class=\"c-news-events__item\">\n\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t<div class=\"c-news-events__item-image\">\n\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/mft.nhs.uk\/hcc\/nhs-england-sickle-cell-prescription-savings-campaign\/\" title=\"Sickle Cell Prescription Savings Campaign &#8211; NHS England\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/mft.nhs.uk\/app\/uploads\/sites\/16\/2023\/10\/Prescription-graphics_Sickle-cell-2-266x248.png\" alt=\"Sickle Cell Prescription Savings Campaign &#8211; NHS England\">\n\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t<div class=\"c-news-events__item-content\">\n\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/mft.nhs.uk\/hcc\/category\/news\/clinical-resources\/\" title=\"Clinical Resources\" class=\"c-news-events__item-category u-border-trust\">Clinical Resources<\/a>\n\t\t\t\t\t\t\t\t\t<a class=\"c-news-events__item-link\" href=\"https:\/\/mft.nhs.uk\/hcc\/nhs-england-sickle-cell-prescription-savings-campaign\/\" title=\"Sickle Cell Prescription Savings Campaign &#8211; NHS England\">\n\t\t\t\t\t\t\t\t\t\t<h4 class=\"c-news-events__item-title\">Sickle Cell Prescription Savings Campaign &#8211; NHS England<\/h4>\n\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t<span class=\"c-news-events__item-date\">09 Oct 2023<\/span>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<li class=\"c-news-events__item\">\n\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t<div class=\"c-news-events__item-image\">\n\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/mft.nhs.uk\/hcc\/patient-event-sickle-cell-thalassaemia\/\" title=\"Patient Event &#8211; Sickle Cell &amp; Thalassaemia\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/mft.nhs.uk\/app\/uploads\/sites\/16\/2023\/10\/2023-11-18_QR_Promo_Poster_v1.0-266x248.jpg\" alt=\"Patient Event &#8211; Sickle Cell &amp; Thalassaemia\">\n\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t<div class=\"c-news-events__item-content\">\n\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/mft.nhs.uk\/hcc\/category\/news\/patient-carer-resources\/\" title=\"Patient &amp; Carer Resources\" class=\"c-news-events__item-category u-border-trust\">Patient &amp; Carer Resources<\/a>\n\t\t\t\t\t\t\t\t\t<a class=\"c-news-events__item-link\" href=\"https:\/\/mft.nhs.uk\/hcc\/patient-event-sickle-cell-thalassaemia\/\" title=\"Patient Event &#8211; Sickle Cell &amp; Thalassaemia\">\n\t\t\t\t\t\t\t\t\t\t<h4 class=\"c-news-events__item-title\">Patient Event &#8211; Sickle Cell &amp; Thalassaemia<\/h4>\n\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t<span class=\"c-news-events__item-date\">10 Oct 2023<\/span>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<li class=\"c-news-events__item\">\n\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t<div class=\"c-news-events__item-image\">\n\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/mft.nhs.uk\/hcc\/sickle-cell-study-opportunity-25-voucher-and-travel-expenses-paid\/\" title=\"Sickle Cell Study Opportunity &#8211; \u00a325 voucher and travel expenses paid\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/mft.nhs.uk\/app\/uploads\/sites\/16\/2023\/10\/male-266x248.png\" alt=\"Sickle Cell Study Opportunity &#8211; \u00a325 voucher and travel expenses paid\">\n\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t<div class=\"c-news-events__item-content\">\n\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/mft.nhs.uk\/hcc\/category\/news\/patient-carer-resources\/\" title=\"Patient &amp; Carer Resources\" class=\"c-news-events__item-category u-border-trust\">Patient &amp; Carer Resources<\/a>\n\t\t\t\t\t\t\t\t\t<a class=\"c-news-events__item-link\" href=\"https:\/\/mft.nhs.uk\/hcc\/sickle-cell-study-opportunity-25-voucher-and-travel-expenses-paid\/\" title=\"Sickle Cell Study Opportunity &#8211; \u00a325 voucher and travel expenses paid\">\n\t\t\t\t\t\t\t\t\t\t<h4 class=\"c-news-events__item-title\">Sickle Cell Study Opportunity &#8211; \u00a325 voucher and travel expenses paid<\/h4>\n\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t<span class=\"c-news-events__item-date\">24 Oct 2023<\/span>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<li class=\"c-news-events__item\">\n\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t<div class=\"c-news-events__item-image\">\n\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/mft.nhs.uk\/hcc\/uk-thalassaemia-societys-new-publication\/\" title=\"UK Thalassaemia Society&#8217;s New Publication!\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/mft.nhs.uk\/app\/uploads\/sites\/16\/2023\/12\/UKTS-Standards-266x248.png\" alt=\"UK Thalassaemia Society&#8217;s New Publication!\">\n\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t<div class=\"c-news-events__item-content\">\n\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/mft.nhs.uk\/hcc\/category\/news\/clinical-resources\/\" title=\"Clinical Resources\" class=\"c-news-events__item-category u-border-trust\">Clinical Resources<\/a>\n\t\t\t\t\t\t\t\t\t<a class=\"c-news-events__item-link\" href=\"https:\/\/mft.nhs.uk\/hcc\/uk-thalassaemia-societys-new-publication\/\" title=\"UK Thalassaemia Society&#8217;s New Publication!\">\n\t\t\t\t\t\t\t\t\t\t<h4 class=\"c-news-events__item-title\">UK Thalassaemia Society&#8217;s New Publication!<\/h4>\n\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t<span class=\"c-news-events__item-date\">14 Dec 2023<\/span>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<li class=\"c-news-events__item\">\n\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t<div class=\"c-news-events__item-image\">\n\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/mft.nhs.uk\/hcc\/first-patients-with-inherited-blood-disorders-to-get-world-first-nhs-test-to-curb-transfusion-side-effects\/\" title=\"First patients with inherited blood disorders to get world-first NHS test to curb transfusion side effects\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/mft.nhs.uk\/app\/uploads\/sites\/16\/2024\/01\/blood-donation-session-in-croydon-2022-266x248.jpg\" alt=\"First patients with inherited blood disorders to get world-first NHS test to curb transfusion side effects\">\n\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t<div class=\"c-news-events__item-content\">\n\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/mft.nhs.uk\/hcc\/category\/news\/\" title=\"News\" class=\"c-news-events__item-category u-border-trust\">News<\/a>\n\t\t\t\t\t\t\t\t\t<a class=\"c-news-events__item-link\" href=\"https:\/\/mft.nhs.uk\/hcc\/first-patients-with-inherited-blood-disorders-to-get-world-first-nhs-test-to-curb-transfusion-side-effects\/\" title=\"First patients with inherited blood disorders to get world-first NHS test to curb transfusion side effects\">\n\t\t\t\t\t\t\t\t\t\t<h4 class=\"c-news-events__item-title\">First patients with inherited blood disorders to get world-first NHS test to curb transfusion side effects<\/h4>\n\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t<span class=\"c-news-events__item-date\">25 Jan 2024<\/span>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<li class=\"c-news-events__item\">\n\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t<div class=\"c-news-events__item-image\">\n\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/mft.nhs.uk\/hcc\/1508-2\/\" title=\"The NEBATA &amp; HCC Annual Thalassaemia Patient Conference\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/mft.nhs.uk\/app\/uploads\/sites\/16\/2024\/04\/Thal_Event_Square-266x248.png\" alt=\"The NEBATA &amp; HCC Annual Thalassaemia Patient Conference\">\n\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t<div class=\"c-news-events__item-content\">\n\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/mft.nhs.uk\/hcc\/category\/news\/\" title=\"News\" class=\"c-news-events__item-category u-border-trust\">News<\/a>\n\t\t\t\t\t\t\t\t\t<a class=\"c-news-events__item-link\" href=\"https:\/\/mft.nhs.uk\/hcc\/1508-2\/\" title=\"The NEBATA &amp; HCC Annual Thalassaemia Patient Conference\">\n\t\t\t\t\t\t\t\t\t\t<h4 class=\"c-news-events__item-title\">The NEBATA &amp; HCC Annual Thalassaemia Patient Conference<\/h4>\n\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t<span class=\"c-news-events__item-date\">11 Apr 2024<\/span>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t\t\t\t<\/ul>\n\t\t\t\t<\/div>\n\t\t\t<\/section><!-- New -->\n\n\t\t    <a href=\"https:\/\/mft.nhs.uk\/hcc\/news\" class=\"c-button c-button--nhs-blue\" title=\"View more news\">View more News<\/a>\n\t\t<\/div>\n\t<\/div>\n\n<\/section>[\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>[vc_row][vc_column][\/vc_column][\/vc_row][vc_row el_id=&#8221;introduction&#8221;][vc_column][vc_row_inner][vc_column_inner][vc_column_text] Introduction [\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_column_text]What is Sickle Cell? Sickle cell is a genetic blood disorder effecting the shape of haemoglobin in the red blood cells. Haemoglobin is the substance in red blood cells that is responsible for carrying oxygen around the body. People with sickle cell disorder are born with the condition &#8211; it is not [&hellip;]<\/p>\n","protected":false},"author":58,"featured_media":0,"parent":16,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-22","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.9 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Resources - Haemoglobinopathy Coordinating Centre<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/mft.nhs.uk\/hcc\/patient-parent-carer-zone\/resources\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Resources - Haemoglobinopathy Coordinating Centre\" \/>\n<meta property=\"og:description\" content=\"[vc_row][vc_column][\/vc_column][\/vc_row][vc_row el_id=&#8221;introduction&#8221;][vc_column][vc_row_inner][vc_column_inner][vc_column_text] Introduction [\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_column_text]What is Sickle Cell? Sickle cell is a genetic blood disorder effecting the shape of haemoglobin in the red blood cells. Haemoglobin is the substance in red blood cells that is responsible for carrying oxygen around the body. People with sickle cell disorder are born with the condition &#8211; it is not [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/mft.nhs.uk\/hcc\/patient-parent-carer-zone\/resources\/\" \/>\n<meta property=\"og:site_name\" content=\"Haemoglobinopathy Coordinating Centre\" \/>\n<meta property=\"article:modified_time\" content=\"2023-07-18T16:16:10+00:00\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data1\" content=\"4 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/mft.nhs.uk\/hcc\/patient-parent-carer-zone\/resources\/\",\"url\":\"https:\/\/mft.nhs.uk\/hcc\/patient-parent-carer-zone\/resources\/\",\"name\":\"Resources - Haemoglobinopathy Coordinating Centre\",\"isPartOf\":{\"@id\":\"https:\/\/mft.nhs.uk\/hcc\/#website\"},\"datePublished\":\"2023-01-16T14:50:54+00:00\",\"dateModified\":\"2023-07-18T16:16:10+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/mft.nhs.uk\/hcc\/patient-parent-carer-zone\/resources\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/mft.nhs.uk\/hcc\/patient-parent-carer-zone\/resources\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/mft.nhs.uk\/hcc\/patient-parent-carer-zone\/resources\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/mft.nhs.uk\/hcc\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Patient, Parent &amp; Carer Zone\",\"item\":\"https:\/\/mft.nhs.uk\/hcc\/patient-parent-carer-zone\/\"},{\"@type\":\"ListItem\",\"position\":3,\"name\":\"Resources\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/mft.nhs.uk\/hcc\/#website\",\"url\":\"https:\/\/mft.nhs.uk\/hcc\/\",\"name\":\"Haemoglobinopathy Coordinating Centre\",\"description\":\"Just another Manchester University NHS Foundation Trust Sites site\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/mft.nhs.uk\/hcc\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Resources - Haemoglobinopathy Coordinating Centre","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/mft.nhs.uk\/hcc\/patient-parent-carer-zone\/resources\/","og_locale":"en_US","og_type":"article","og_title":"Resources - Haemoglobinopathy Coordinating Centre","og_description":"[vc_row][vc_column][\/vc_column][\/vc_row][vc_row el_id=&#8221;introduction&#8221;][vc_column][vc_row_inner][vc_column_inner][vc_column_text] Introduction [\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_column_text]What is Sickle Cell? 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