{"id":2553,"date":"2020-10-26T10:31:41","date_gmt":"2020-10-26T10:31:41","guid":{"rendered":"https:\/\/mft.nhs.uk\/mri\/?p=2553"},"modified":"2020-10-26T10:32:22","modified_gmt":"2020-10-26T10:32:22","slug":"manchester-lupus-patient-first-recruit-to-nihr-imid-bioresource","status":"publish","type":"post","link":"https:\/\/mft.nhs.uk\/mri\/manchester-lupus-patient-first-recruit-to-nihr-imid-bioresource\/","title":{"rendered":"Manchester lupus patient first recruit to NIHR IMID BioResource"},"content":{"rendered":"

A lupus patient at the Manchester Royal Infirmary (MRI), part of Manchester University NHS Foundation Trust (MFT) was the first UK recruit to the newly launched NIHR IMID BioResource \u2013 a national database of inflammatory disease patients willing to participate in research.<\/p>\n

The NIHR BioResource<\/a> is a network of 13 centres which connect researchers to suitable volunteers \u2013 both with and without health conditions \u2013 available to be recalled for future research.<\/p>\n

The Immune Mediated Inflammatory Diseases (IMID) BioResource makes up one of its common disease areas<\/a>, and recruits UK patients with IMID conditions, including rheumatoid arthritis, psoriasis and connective tissue diseases such as lupus.<\/p>\n

These conditions affect a large proportion of the UK population \u2013 with rheumatoid arthritis affecting over 430,000 UK adults<\/a> alone \u2013 significantly impacting their quality of life.<\/p>\n

\"\"
Helen Nichols<\/figcaption><\/figure>\n

Helen Nicholds, 34, from Manchester, joined the NIHR IMID BioResource during her routine check-up at MRI\u2019s Kellgren Centre for Rheumatology<\/a>. She said:<\/p>\n

\u201cIt\u2019s pretty exciting and I\u2019m interested to see where I can play a part in future research. I\u2019ve participated in a couple of studies before and this wasn\u2019t much different from my usual consultations, just an extra questionnaire about my condition and a blood sample.<\/p>\n

\u201cI was first diagnosed with Sjogren\u2019s syndrome<\/a> about ten years ago. I had check-ups every six months but unfortunately it developed into lupus about four years ago and started to affect other parts of my body<\/p>\n

\u201cLupus is so complicated, and doctors are still learning things about it. If there\u2019s anything I can do to contribute to that, help other people or even myself in the future, I\u2019m really eager to do that.<\/p>\n

Helen works as an optometrist, though is having to shield during COVID-19 due to being at higher risk due to her condition. She added:<\/p>\n

\u201cMy profession is science-based, and with having an auto-immune condition I\u2019m always interested in new scientific developments. Hopefully the NIHR IMID BioResource will make it easier to be part of this and new treatments.<\/p>\n

\u201cCare at the Kellgren has been excellent and the nurses and my consultant Dr Parker have been great. It\u2019s been quite challenging trying to find out the right medications and treatments for my condition, but they\u2019ve always given the best care and we\u2019ve finally found something that seems to be working for me.<\/p>\n

\u201cThe staff see so many patients here but it\u2019s always nice that they seem to know who I am and it\u2019s a great environment.\u201d<\/p>\n

NIHR IMID BioResource is a collaboration of northern NIHR Biomedical Research Centres (BRC) \u2013 Manchester, Leeds and Newcastle. MFT is the lead centre for IMID BioResource, supported by The University of Manchester<\/a>, NIHR Manchester Biomedical Research Centre<\/a> (BRC) and the NIHR Manchester Clinical Research Centre<\/a> (CRF). The IMID BioResource is funded through the NIHR BioResource<\/a>.<\/p>\n

Volunteers provide a small blood sample and health and lifestyle information, which is stored in the NIHR BioResource national database which researchers can subsequently use to find potential study participants.<\/p>\n

\"\"
L-R Jo-Ann Nicholson (Senior Clinical Nurse Practitioner), Dr Ben Parker (Consultant Rheumatologist), Preetha Mathew (Research Nurse), Helen Nicholds (patient), Professor Ian Bruce (Chief Investigator, NIHR IMID BioResource), Kate Stirling (IMID Manchester Project Assistant)<\/figcaption><\/figure>\n

Professor Ian Bruce, Consultant Rheumatologist at the Kellgren Centre, Director of the NIHR Manchester BRC and Chief Investigator of the NIHR IMID BioResource, said:<\/p>\n

\u201cAs part of our \u201cOne Manchester\u201d approach with researchers working across the Kellgren Centre, Manchester BRC and The University of Manchester, Manchester has become a leading research centre for inflammatory conditions. We\u2019re delighted for Manchester to be the lead site for the NIHR IMID BioResource and to welcome the first of what we hope to be many volunteers.<\/p>\n

\u201cWe\u2019re already working with colleagues across the UK, including NIHR centres in Leeds, Newcastle and Cambridge, to widen recruitment. Together we can help connect researchers to willing volunteers and build a national network to support pioneering research.\u201d<\/p>\n

Consultant Rheumatologist and Medical Director at NIHR Manchester Clinical Research Facility at Manchester Royal Infirmary, Dr Ben Parker, guided Helen through her sign-up to the NIHR IMID BioResource. He added:<\/p>\n

\u201cHelen has been one of my patients for the last seven years and her evolving rheumatic disease has been challenging to manage and a great example why research is so vital. We\u2019re really grateful to her for volunteering for the NIHR IMID BioResource.<\/p>\n

\u201cOur team of research nurses, clinical research practitioners and study coordinators have worked incredibly hard to get this underway, and we hope other patients, both at the Kellgren Centre, and across the UK, will join her in contributing towards future research.\u201d<\/p>\n

Visit the NIHR BioResource website<\/a> for more information, or contact the IMID team on IMID@Manchester.ac.uk<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"

A lupus patient at the Manchester Royal Infirmary (MRI), part of Manchester University NHS Foundation Trust (MFT) was the first UK recruit to the newly launched NIHR IMID BioResource \u2013 a national database of inflammatory disease patients willing to participate in research. 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