In this section
HCC Online Education Videos
The HCC holds regular online education sessions for haemoglobinopathy staff. These sessions are recorded and hosted on our YouTube account and embedded below. Please note these videos are aimed at health care professionals for training purposes rather than the general public.
List of HCC Education Videos:
1. Acute Pain Management
2. Acute Chest Syndrome in Children
3. North England Event 30/06/23 (5 videos)
4. Endocrinopathies & Bone Disease in Thalassaemia
5. Blood Transfusion in Sickle Cell
6. Prenatal Diagnosis: Antenatal Screening in Thalassaemia Patients
7. The Kidney & Beyond – Sickle Cell Transplantation
8. Transfusion in Sickle Cell Disease
9. Caring for patients with Thalassemia and RIA
10. Nutrition in Sickle Cell
11. Transfusion in RIA
12. Paediatric Thalassaemia Management – Iron Chelation Focus
13. Monitoring & Iron Chelation Therapy
14. DBA & CDA Diagnosis and Management for Adults and Children
Acute Pain Management in Sickle Cell Disease (06/11/23) Presenter: Dr Sanne Lugthart, Consultant Haematologist, University Hospitals of Bristol NHS Foundation Trust. Host: Dr Nandini Sadasivam, Consultant Haematologist (MRI) and HCC Clinical Lead for North England Thalassaemia and RIA.
North England Haemoglobinopathy Clinical Education Event 30th June 2023
This hybrid event, held in Manchester city centre and via MS Teams, featured a whole host of experts in their fields. Thankfully for those that couldn’t attend on the day we have some recordings below of the presentations.
This event was jointly hosted by NW Sickle Cell and North of England Thalassaemia and RIA HCC & North East & Yorkshire HCC. Thank you to all those that attended and special thanks to the speakers who travelled near and far to present in person.
Presentations from 30/06/23:
- Iron Chelation/Iron Overload – Dr Nandini Sadasivam, Consultant Haematologist, Manchester Royal Infirmary, MFT.
- CDA & DBA – Dr Noémi Roy, Consultant Haematologist, Oxford University NHS Foundation Trust
- Aneurysms and Cerebral Revascularisation in Patients with Moyamoya Syndrome – Mr Christos Tolias, Consultant Neurosurgeon, King’s College Hospital NHS Foundation Trust.
- Endocrinopathies & Bone Disease in Thalassaemia – Dr Laxmi Balmuri, Consultant Endocrinologist, Manchester Royal Infirmary
- Haploidentical Stem Cell Transplants in Sickle Cell – Dr Beki James, Paediatric Consultant Haematologist, Leeds Children’s Hospital
* WARNING – BELOW VIDEO CONTAINS SOME SURGICAL FOOTAGE *
Endocrinopathies & Bone Disease in Thalassaemia (06/03/2023)
Presenter: Dr Laxmi Balmuri, Consultant Physician & Endocrinologist, Manchester Royal Infirmary (MRI). Host: Dr Nandini Sadasivam, Consultant Haematologist (MRI) and HCC Clinical Lead for North England Thalassaemia and RIA. Additional support from Eva Clarke, HCC Network Manager, Manchester University NHS Foundation Trust.
Blood Transfusion, Antibodies & Hyperhaemolysis in Sickle Cell (15/02/2023)
Presenter: Andy Houghton, Lead Haemoglobinopathy CNS, Liverpool University Hospitals NHS Foundation Trust. Host: Eva Clarke, HCC Network Manager, Manchester University NHS Foundation Trust.
Prenatal Diagnosis: Antenatal Screening in Thalassaemia Patients (18/01/2023)
Presenter: Della Carr, Specialist Midwife, Manchester Local Community Organisation. Host: Dr Nandini Sadasivam, Consultant Haematologist and HCC Clinical Lead for North England Thalassaemia and RIA.
The Kidney & Beyond – Sickle Cell Disease and Transplantation (12/12/2022)
This education session consists of two presentations. Presentation 1 – Dr Raj Thuraisingham, Consultant Nephrologist and Divisional Director for Specialist Medicine, Barts Health NHS Trust. Presentation 2 – Dr Clare Samuelson, Consultant Haematologist and Training Programme Director, Sheffield Teaching Hospitals NHS Foundation Trust.
Transfusion in Sickle Cell Disease (19/10/2022)
Presenter: Dr Joe Sharif, Adult Haematology Consultant, Manchester Royal Infirmary. Part of the National HCC Educational Programme.
What do you need to know: Caring for patients with Thalassemia and Rare Inherited Anaemia (12/10/2022)
This education session consists of two presentations. Presentation 1 (Adult Case): Dr Jane Potter, ST3, Manchester University NHS Foundation Trust.
Presentation 2 (Paediatric DBA Case): Dr Sabiha Kausar, Paediatric Haematology Consultant, RMCH.
Nutrition in Sickle Cell (22/08/2022)
Presenter: Claudine Matthews, MSC, Registered Dietician
Transfusion in Rare Inherited Anaemia (04/05/2022)
Presenter: Dr Noémi Roy, Haematology Consultant, NHP Rare Anaemia Lead, Oxford University Hospitals NHS Foundation Trust
Management of Paediatric Patients with Thalassaemia, Focus on Iron Chelation Therapy (11/03/2022)
Presenter: Dr Banu Kaya, Haematology Consultant, Barts Health Trust
Monitoring & Iron Chelation Therapy (24/01/2022)
Presenter: Dr Nandini Sadasivam, Adult Haematology Consultant, Manchester Royal Infirmary (MFT)
DBA & CDA Diagnosis and Management for Adults and Children (22/09/2021)
Presenter: Dr Noémi Roy, Haematology Consultant, NHP Rare Anaemia Lead, Oxford University Hospitals NHS Foundation Trust Date: 22/09/21
