Sickle Cell Online Patient Event 2024

posted 21 November, 2024

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Event details

Online via Microsoft Teams

We’re thrilled to invite you to our upcoming Sickle Cell Online Patient Event on Tuesday, November 26th, 2024, from 5:00 PM to 7:15 PM. This virtual event will provide the latest information on Preparing for Winter. So, grab your favourite drink, find a cozy spot, and join us from the comfort of your home.

Agenda:

  • 17:00 – 17:35 – Benefits – what help are you entitled to in Order to keep you out of hospital?
  • 17:35 – 18:05 – Pain Management at Home
  • 18:05 – 18:35 – Manchester Royal Infirmary Sickle Cell Unit
  • 18:35 – 19:15 – Treatment Options – new drugs and withdrawal of Voxelator

After each session, there will be a Q&A where you can ask questions to our experts: consultants, nurses, and members of the research and community teams.

Platform:

Please note this event is aimed at those with full sickle cell rather than sickle cell trait.

Haemoglobinopathy Coordinating Centre | Sickle Cell: North West of England | Thalassaemia & RIA: North of England