These educational resources are targeted at Adults. We are working hard to provide age-appropriate educational resources. In the meantime, we are sharing resources that have been created by other content creators.
These videos will help you learn more about haemoglobinopathies. Click on the links below or scroll down to a video.
1. Sickle Cell – What is a red blood cell?
2. Life cycle of a red blood cell
3. Introduction to Thalassaemia
4. Medication – Hydroxycarbamide
5. A parent’s guide to managing sickle cell
6. Thalassaemia Major – Having a blood transfusion at RMCH
Sickle Cell
A question we often get asked is: what is a red blood cell and how does my sickle affect my red blood cells?
Dr Amber M. Yates, Paediatric Haematology Oncologist, answers this question in the video below.
*Note that the video describes a malignant mutation whereas in the UK we would describe it as a point mutation.
The Red Blood Cell Life Cycle (Erythropoiesis)
This animation looks at the creation, development and removal of red blood cells.
Introduction to Thalassaemia
An overview of thalassaemia – causes, signs and symptoms, diagnosis and treatment.
Medication
What is Hydroxycarbamide?
The Wessex and Thames Valley HCC have created a video that discusses sickle cells, hydroxycarbamide, and its impact on sickle cell crises. Check out the video below to learn more.
Blood Transfusions
Join Yaseen as he shows you what it is like to have a blood transfusion at Royal Manchester Children’s Hospital. You see the blood transfusion process and Yaseen explains why he needs it. [Please note this video does contain footage of the insertion of a cannula at 1:24]
A parent’s guide to managing sickle cell
The Sickle Cell Society has created an excellent resource for parents. It includes a comprehensive guide to understanding sickle cell, management and treatment of, advice on living with sickle cell and other useful information. You can read it here.