Sickle Cell Patient Event 2026

News posted 15 April, 2026

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Learn, Connect, and Share: A Day for the Sickle Cell Community

The Haemoglobinopathy Coordinating Centre (HCC) for the North of England is thrilled to invite you to our rescheduled Sickle Cell Patient Event!

After having to postpone last year, due to a meningitis outbreak, we are back and more excited than ever to bring the community together. This day is all about you – an opportunity to meet others, hear from leading experts, and share your experiences in a supportive, welcoming environment.

Event Details

  • Date: Saturday 6th June 2026

  • Location: Alder Hey Hospital (Exact venue details provided upon registration)

  • Time: 10:00 AM – 5:00 PM

What to Expect

  • Gene Therapy & New Treatments: Get the latest updates on treatment pathways, clinical trials, and pastoral support.

  • Patient Stories: Connect with others through inspiring journeys and peer-led discussions.

  • Interactive Workshops: Join sessions designed to enhance your health knowledge and confidence.

  • Charity & Support Stalls: Meet teams from across the region dedicated to supporting the Sickle Cell community.

  • Children’s Activities: We will have a dedicated space for children with fun activities planned throughout the day!

What’s Included (All FREE!)

  • Delicious Refreshments: Available throughout the day.

  • Lunchtime Meal: A full meal provided for all registered guests.

  • The Legendary Raffle: It’s back! Enter for free for a chance to win some fantastic prizes.

Secure Your Free Spot

Registration is essential due to venue capacity and catering requirements.

The link to registrar will appear on this page shortly (a link to Ticket Tailor)

Important Information:

  • Tickets: Once registered, you will receive an email with your QR code and PDF ticket. Please save this to your phone or print it for entry.

  • Venue: Alder Hey Hospital, Liverpool.

  • Changes: If your plans change, please let us know so we can offer your spot to someone else on the waiting list.

  • Target Audience: This event is specifically for individuals with Sickle Cell Disorder (not trait) and their families, to ensure the content remains tailored to your needs.

We can’t wait to finally see you there and make this a day to remember!