Empowering the Thalassaemia Community: A Day to Connect, Learn, and Share
The North of England HCC invites you to a full-day programme featuring expert insights into key developments, interactive workshops, and community networking tailored for the Thalassaemia community. It’s the perfect opportunity to gather the facts, chat with peers, and enjoy a supportive environment away from a clinical setting.
Event Details
Date: Saturday 4th July 2026
Location: Central Manchester Venue (Location details to be shared shortly)
Time: 10:00 AM – 5:00 PM
What to Expect
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Gene Therapy & Future Treatments: Updates and empowering sessions on treatment pathways, pastoral support, and fertility.
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Patient Stories: Connect through shared experiences, inspiring journeys, and peer-led support discussions.
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Interactive Workshops: Join sessions designed to build your health knowledge and confidence.
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Charity & Support Stalls: Meet with organisations providing specialised advice and resources for the Thalassaemia community.
What’s Included (All FREE!)
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Delicious Refreshments: Available throughout the day.
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Lunchtime Meal: A full meal provided for all registered guests.
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The Legendary Raffle: It’s back! The triumphant return of our raffle with fantastic prizes to be won.
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Children’s Room: A supervised space for ages 3–12 with fun activities and entertainment. (Please note: Children must be fully toilet trained. Activities are aimed at younger children).
Secure Your Free Spot
Registration is essential due to venue capacity and catering requirements. Unregistered attendees cannot be accommodated on the day.
[Link to the Ticket Tailor registration page will appear here shortly]
Important Information:
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Tickets: Please register for yourself and any family/guests (limit of 4 per group). If you need more, please contact us. Once registered, you will receive a QR code and PDF ticket via email – please save this to your phone or print it for entry.
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Venue: We are currently finalising the Manchester venue and will share the exact location with you in the coming weeks.
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Changes: If your plans change, please let us know immediately so we can offer your spot to someone else.
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Target Audience: This event is specifically for individuals with full thalassaemia (major or intermedia) and their families, rather than those with trait, to ensure the content remains tailored to your needs.
We can’t wait to see you in Manchester for a brilliant day of learning and connection!