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Living with aspergillosis can sometimes feel isolating, particularly because many patients and carers may never meet another person affected by the condition. Peer support and access to reliable information can help people understand their condition, share experiences and live as well as possible with aspergillosis.
The National Aspergillosis Centre (NAC) provides information and opportunities for patients and carers across the UK to connect with others affected by aspergillosis.
Ways to connect
People affected by aspergillosis can connect with others in several ways, including online patient meetings, Facebook peer support and Telegram discussion.
The Aspergillosis Support (UK) Facebook group is maintained by the Fungal Infection Trust (FIT) and provides a peer-support community where people can share experiences of living with aspergillosis.
Telegram is also used for ongoing discussion and contact between members of the aspergillosis community, including conversations that continue between online meetings.
NAC on social media
The National Aspergillosis Centre maintains a Facebook page where you can find news, events, research updates and notices from the Centre.
Comprehensive patient information about aspergillosis
Aspergillosis comes in several forms, and diagnosis, treatment and living with the condition can be complex. The National Aspergillosis Centre supports aspergillosis.org, a comprehensive information resource for patients and carers covering the different forms of aspergillosis, treatments, living with the condition, research, patient support and community resources.
Patient support meetings
A new diagnosis of aspergillosis can bring many questions and concerns. Talking with other people who understand what it is like to live with the condition can be valuable for both patients and carers.
The National Aspergillosis Centre runs regular online meetings for people affected by aspergillosis. These include informal opportunities to meet other patients and carers, discussion sessions and longer monthly meetings covering topics relevant to living with aspergillosis.
Meetings are free to attend and open to patients and carers. For the current meeting programme, joining information, Telegram access, recorded sessions and other support resources, visit the aspergillosis.org patient and carer website.