Researchers from our centre are credited with improving CF care the world over. Some key studies have been highlighting the importance of exercise as a therapy, recognising and managing CF bone disease, the significance of patient segregation in preventing cross-infection and the value of people with CF being looked after by a dedicated multi-professional team in a specialist centre.
Research makes it possible for CF care to progress and develop and we are very grateful to our patients for playing such a vital role. All our team members are encouraged to attend and present work at national and international conferences, where we learn about the most important advances in cystic fibrosis, and bring this knowledge back to improve care for our patients.
Research development is lead by Dr Alex Horsley, Consultant at MACFC, Senior Lecturer at the University of Manchester and Deputy Director of the Respiratory and Allergy Clinical Research Facility. His work is funded by the National Institute of Health Research, and is based around methods of identifying early changes in the CF lung in order to improve surveillance and allow earlier intervention. He is also the principal investigator on a number of clinical trials carried out at MACFC, sometimes with our partner the Medicines Evaluations Unit. Clinical trials are carefully designed studies that allow researchers to test new medicines or ways of improving care for CF patients, and are essential to the continued improvement of medical treatments in CF.
In addition we have close links with other research colleagues at the North West Lung Centre, the University of Manchester, The National Aspergillosis Centre and other academic institutions around the UK and internationally.
Want to find out more?
If you want to find out more about CF research in general, what it all means and how to get involved, download a copy of our new booklet “How to get involved in CF research”. Alternatively, you can pick up a copy in clinic and we are always happy to answer any questions or discuss any issues you wish to raise. You can also visit our research section for more information.
For an up-to-date list of the studies that are currently open and recruiting at MACFC you can either:
- Access our Facebook page for trial news
- Follow us on Twitter @manchester_cf
- Check the Research News noticeboards in outpatients and on Pearce ward.
- Email us on firstname.lastname@example.org.
We also run a forum where patients can talk about research and where doctors and researchers can get patients’ opinions. We may need opinions on what patients view as priorities for research in general, or on a specific proposal we have put together. We may also need help looking through a patient information sheets to make sure that they are easy to understand and provide the correct amounts of detail.
If you think you would like to help with any of these activities then please get in touch.